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Amyloid
- The official journal of the International Society of
Amyloidosis |
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The Amyloidosis Foundation - The Foundation is a merge of the Amyloidosis Research Foundation and the Amyloidosis Support Network. The key priorities are raising awareness in the medical field, educate medical professionals, support medical and scientific research and to support patients affected by amyloidosis. |
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Amyloid
Treatment and Research Center - Boston University School of
Medicine |
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Amyloid
Research - Indiana University School of Medicine |
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Amyloidosis
Support Groups - Here you will find everything you need to know
about what is happening in the world of support and awareness for
Amyloidosis patients, care givers and those who have lost some one to
this insidious disease. |
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ILTS
- International Liver Transplantation Society |
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ELTR
- European Liver Transplant Registry |
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The
NHS National Amyloidosis Centre - The NHS National
Amyloidosis Centre is the only centre in the UK specialising in
amyloidosis and is part of the University College London Centre for
Amyloidosis and Acute Phase Proteins, one of the world's leading centres
for amyloid research. The Centre has “state of the art” clinical and
research facilities, and a team of highly qualified clinical, research
and support staff |
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Groningen
Unit for Amyloidosis Research & Development (GUARD) –
Dutch website with clinical information about Amyloid and systemic
Amyloidosis for doctors and patients |
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German
Society of Amyloid Diseases |
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The Transthyretin
Amyloidosis Outcomes Survey (THAOS). THAOS is a global,
observational database of clinical information on patients with TTR
amyloidosis (ATTR). The principal aims of THAOS are to enhance the
understanding of the variability, progression, and natural history of TTR
amyloidosis by studying a large and heterogeneous patient population. |
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