Links related to Familial Amyloidotic Polyneuropathy and
Liver transplantation


Amyloid - The official journal of the International Society of Amyloidosis
The Amyloidosis Foundation - The Foundation is a merge of the Amyloidosis Research Foundation and the Amyloidosis Support Network. The key priorities are raising awareness in the medical field, educate medical professionals, support medical and scientific research and to support patients affected by amyloidosis.
Amyloid Treatment and Research Center - Boston University School of Medicine
Amyloid Research Group - Indiana University School of Medicine
Amyloidosis Support Groups - Here you will find everything you need to know about what is happening in the world of support and awareness for Amyloidosis patients, care givers and those who have lost some one to this insidious disease.
ILTS - International Liver Transplantation Society
ELTR - European Liver Transplant Registry
FAMY - A Swedish  organization for patients with Familial Amyloidosis
The NHS National Amyloidosis Centre - The NHS National Amyloidosis Centre is the only centre in the UK specialising in amyloidosis and is part of the University College London Centre for Amyloidosis and Acute Phase Proteins, one of the world's leading centres for amyloid research. The Centre has “state of the art?clinical and research facilities, and a team of highly qualified clinical, research and support staff
Groningen Unit for Amyloidosis Research & Development (GUARD) ? Dutch website with clinical information about Amyloid and systemic Amyloidosis for doctors and patients
German Society of Amyloid Diseases
The Transthyretin Amyloidosis Outcomes Survey (THAOS). THAOS is a global, observational database of clinical information on patients with TTR amyloidosis (ATTR). The principal aims of THAOS are to enhance the understanding of the variability, progression, and natural history of TTR amyloidosis by studying a large and heterogeneous patient population.

 

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